Sunday, 17 October 2010

Meet Carson

I would like to officially Introduce you all to a very special little boy who we call Carson. Carson is not his real name but its the name given to him on REECES RAINBOW to protect his identity. Reeces Rainbow is an amazing ministry that was started to help orphans with down Syndrome find families. They have since added children with many other special needs as well. Please check out the link as there are so many children needing families.

Carson is a sweet little 7 year old boy who was born on April 17, 2003. Carson was born with a rare skin condition called epidermolysis bullosa. You may ask what is EB?
Epidermolysis Bullosa (EB) is a rare genetic skin disease that causes the skin to be so fragile that the slightest friction can cause severe blistering–inside and outside the body. Today there is no cure. Severe forms of EB cause patients to live with constant pain and scarring. The worst forms of EB lead to eventual disfigurement, disability, and often early death.

Carson is also an orphan in Eastern Europe in need of a forever family. Its so very hard to imagine a child with EB in an orphanage. Persons with EB need specialized bandages and extremely special care. I know this because my daughter Mavis has this condition. We are starting this blog to help lil Carson by raising the needed funds to cover his adoption. He does not yet have a family but we are also hoping this will spread the word and God will send the perfect family for him. EB can already cause many financial burdens and we would like to help take away the financial barrier for his adoption.

Carson is living on borrowed time right now. In his country most children are transferred to an Institution by age 4 or 5. In these Institutions 85% of children do not survive the first year there! Its a miracle he has not been transferred to there yet since he is already 7 years old. He is so very blessed to still be at a baby house for babies and younger children but his time is coming. This is why its so important that we do this now for him! The only thing that will save him from being transferred is a family!!

So happy to see have updates on this boy! Carson was listed with Reeces Rainbow several years ago, and they lost touch with his orphanage. He is already 7, and still living at the baby house. Carson is a very very smart and functional boy! He has light brown hair and beautiful hazel eyes. He was born with congenital epidermolysis bullosa. He absolutely needs improved medical care and a loving family!!

From his caregivers: Carson is the size of a 4-5 year old. Understands absolutely everything but cannot talk since his tongue muscle is not working (cicatricial sclerosis?), the tongue accreted to lower palate because of emersed vesicles. Needs plastic surgery of tongue. Very nice boy.

EB is not an easy condition to deal with, but Carson is so smart and will make such a wonderful son. He has a glowing personality and will do great in a family of his own.

We would appreciate everyones help and prayers in raising the needed funds for Carson. There is a chip in now on the blog to the right. All donations go directly to Reeces Rainbow and are completely tax deductible. Also please feel free to spread the word about this amazing thing we are trying to do to help him get a little closer to finding his forever family because I know there is one out there!! We will be adding updates and little facts about EB hopefully daily, so please check it out.

Look at this sweet little boy..........He needs our help!

1 comment:

  1. This boy touched my heart the second I saw him. Reading about him has brought tears in my eyes... sweet Lord, please let him find the family he deserves!!